Patient and Clinician Decision Support to Increase Genetic Counseling for Hereditary Breast and Ovarian Cancer Syndrome in Primary Care
Much ovarian cancer occurs as a consequence of an inherited genetic mutation, with about 20% being associated with BRCA1/2 variants. Screening for this mutation has the potential to reduce the prevalence of ovarian cancer through risk reduction surgery. It is recommended in the US that asymptomatic women should be screened. Many women especially in minority ethnic and racial groups are not screened with resultant health disparity and poor clinical outcomes.
This prospective Randomised Clinical Trial looked at the benefit or not of providing a Decision Aid to women and a Navigation Tool to clinicians regarding genetic screening as an attempt to increase the number of women receiving screening. 190 women were recruited to the trial with 100 being in the intervention group and the others receiving standard educational material.
Results from the trial showed no significant difference in the number of women from each group who underwent genetic counseling or screening. More women in the intervention group did opt for counseling and screening and testing showed a greater understanding of cancer risk amongst those women who received decision support.
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