BRACAVENIR: an observational study of expectations and coping in young women with high hereditary risk of breast and ovarian cancer
Genetic screening with BRCA positive results puts pressure on young women, with difficult decisions about whether to undergo risk reduction surgery causing fertility and body image concerns.
This study from France looked at the value of an educational and psychological support program. Psychometric testing showed increased optimism, self-esteem and quality of life on completion of the program.
Most described the communication of genetic test results as brutal and traumatic,. Relationship issues after surgery were important, body image less so. There was no sense of injustice about BRCA positive status.
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